Paediatric cystic fibrosis

What we do

We are a Regional Specialist Paediatric Cystic Fibrosis (CF) Service providing care mainly to children and young people who live in South East London, Kent and East Sussex.

The service runs shared care clinics with local hospitals throughout the region with our multidisciplinary team visiting each of these at least twice a year. The rest of our patients receive all their CF care at King's.

As part of King’s Health Partners - which includes King's, Guy’s and St Thomas’ and South London and Maudsley NHS Foundation Trusts - we manage all CF complications other than lung transplants.

We also support any child with CF who is admitted to the Specialist Liver Service at King’s. We have strong links with King's Adult CF service and run special transition clinics.

The service is involved in a number of multi-centre research studies, including:

  • Early detection of lung disease in infants with CF diagnosed by newborn screening.
  • Assessing the impact and safety of home intravenous antibiotic treatment for children with CF.
  • Assessing a new measure of liver fibrosis in children with CF to identify liver disease earlier.

Preparing for your appointment

We work hard to minimise the risk of cross-infection between patients, so appointments are made through our CF Clinic Co-ordinator or CF nurses. Children are allocated to clinics according to the results of previous sputum samples or cough swabs.

Please ensure your child comes to the clinic on time. They can then be given a clinic room where they will be seen by members of our team. If they cannot make their appointment or are delayed, please let us know as soon as possible by phoning the Clinic Co-ordinator.

We normally see new patients within one week. If your child is unwell, you can arrange an urgent appointment at any time after you have talked to the Paediatric CF Co-ordinator or CF nurses.

Location

Third floor, Hambleden Wing, Denmark Hill, London, SE5 9RS

Contact Details

  • Main Reception: +44 (0)20 3299 3562
  • Clinic Coordinator: +44 (0)20 3299 3562

Patient Information Leaflets

Conditions we treat

We provide specialist tertiary paediatric cystic fibrosis care primarily to children and young people who live in South East London, Kent and East Sussex.

We run shared care clinics with local hospitals around the region and our multidisciplinary team will visit each hospital at least twice a year. The rest of our patients receive all their CF care at King's. There is an active policy to minimise risks of cross-infection.

Within King’s Health Partners we can manage all of the complications of CF other than lung transplantation.

We also provide input for any child with CF who is admitted to the Specialist Liver Service at King’s.

Booking a patient at King's

Routine Referrals

For routine referrals, contact the Paediatric Cystic Fibrosis Co-Ordinator on 020 3299 3562.

Emergency Referrals

For emergency referrals, contact the Paediatric Cystic Fibrosis Co-Ordinator on 020 3299 3562.

Key Clinical Staff

Name Job Title
Mr Mike Seaborne Paediatric Cystic Fibrosis Pharmacist